Superbowl 50 and The Crying Tebow

    Well, yesterday was an interesting day (and I'm not just talking about the superbowl).  So my last episode was on Wednesday last week and, although I haven't had another one, I've been battling this weird migraine on and off for 4 days.  I seem to be getting them after episodes, especially after what I call "stand alone" episodes (an episode with non-episode days on either side of it).  It's usually on the right side of my head and is very pressure sensitive, makes my eyes really sensitive to light, etc.  It's pretty much always lurking in the days following a stand alone episode but if I laugh or bend over, the pain intensifies significantly.

    So after dealing with this migraine for four days, I finally felt well enough to go for a walk; just around the block, something light and easy.  I couldn't make it even a quarter of the way.  I didn't even realize what was happening; all of the sudden I was on the ground, in pain and in this awkward kneeling position.  I couldn't put any weight on my ankle so I just stayed there for a couple minutes crying, trying not to puke (it hurt so bad and pain of any kind hurts my feelings....I know it's ridiculous) and trying to figure out what had happened.  Apparently, I had walked off of the road, twisted my left ankle, tore open my right knee and landed looking like I was taking a knee...I call this move "The Crying Tebow" and it will soon be all the rave.  :)

    After taking a second to realize that I was not going to puke, that no, I was not dying and no, someone did not push me, I braved the pain of standing, called Netti (one of my sisters) and told her what had happened...she laughed, apologized, laughed some more and sent Jay (my brother) and Halee (my sister-in-law) to come get me.  They pulled up in Netti's car about a minute later, I limped over to it and got in and they drove me the 20 seconds home.  At home, Netti took care of my knee (because I'm a baby and a horrible patient when in pain) and got ice for my ankle, which had already swollen enough to make my shoe feel tight.  As the evening wore on, I realized that, in addition to my ankle and knee, I must have pulled some muscle in the fall because, man am I sore!  So the evening was spent watching the Broncos dominate the Panthers in superbowl 50 with nachos, ice, Advil and muscle rub, card games and bananagrams on the side.  I still feel a little loopy but the weird level is low enough to push through which is good because I'm turning in my nursing application today!!!

The long awaited EEG

    So far so good!  I'm feeling quite a bit better since the last episode although my nerves seem to have been on the fritz the past couple of days.  After waiting for the sleep clinic to contact me and hearing nothing, I finally started calling them...every hour.  I started leaving them messages about every 60 minutes until I finally got through to someone!  She looked up my referral and got me all scheduled for the ambulatory EEG my neurologist ordered about 5 weeks ago!  Yay!  Some less than great news is that it isn't until March 3rd, but at least it's happening.

    From the little I know about ambulatory EEGs, it sounds like I'll go in on the 3rd, get all hooked up and then go home.  I'll continue to go back in at the same time each day for two to four days.  Hopefully I have a big seizure during that time so the EEG can record the electricity in my brain and the doctors can tell me what the heck is going on.

    Thank you for all of the prayers and well wishes!  I have an amazing community around me physically, spiritually and emotionally and I greatly value that! =)

<3

And so it Continues

    Four weeks ago, I had my most recent neurologist appointment.  He looked at the recordings we had taken and agreed that it does look like I'm having seizures.  With that, the doctor said he would set up an ambulatory EEG with Salem Hospital.  So, more waiting...story of my life right now.

In the meantime, the last week has been great!  I've gone out of town for a few days, witnessed students hearts and minds being healed and challenged, started getting back into my exercise routine, haven't had any seizures and, best of all, gotten my relationship with God back on track.

    But after 8 days of no seizures, I had another one today.  My dad said this one wasn't any different except that I seem to be coming out of the after-fog faster.  Now that I've had these episodes so many times, I have recognized some patterns.

Before (I call this the "build up"):
    First of all, when I'm tired or if I have a ton of caffeine, I'm more likely to have one.  Then when I'm about to have one, my heart pounds, my eyes skip (think YouTube buffering in very short blips or a scratched DVD), lines or blobs of bright lights appear in my eyes (sometimes dependent on my other senses), lights around me are too bright or look funny, my limbs and jaw start clenching and I have to concentrate on relaxing them, nature suddenly calls, my face and/or tongue goes numb, my scalp tingles, and I usually feel pretty euphoric (I imagine it's like being high).  Sometimes I also feel like bugs are crawling on me or I think that I see them out of the corners of my eyes.  The build up can last anywhere from an hour to a few days.  It can come and go several times before I actually have one.

During:
    While it's happening, I seem to be able to hear my surroundings, my eyes close and my body vibrates and/or stiffens/contracts.  My family says I moan a little and have a hard time breathing.

After (I call this the "after fog"):
    When I come out of it, I am tired, hungry (craving pears and eggs for some reason), unable to talk, confused and sore.  It can take a while for the after fog to wear off but now that I know what to expect, it seems like I come out of the fog a little quicker.  Right when I come out of it, I usually feel apathetic....which is very rare for me.

    So this time was about "normal."  The after emotions were different though.  As I write this on the heels of choosing to say, "Great are You, Lord," despite the circumstances, I struggle to reconcile the confusion and frustration with that attitude.  Today's episode happened at staff meeting (which I was super excited to go to since I haven't been able to attend for a while) and, while it's a safe place to have one, I felt embarrassed (not that I was having one, but that it was disruptive), frustrated (that I was having one there, that I'm having them at all, that I'm so frustrated over something I can't control) and confused.

    I'm confused as to why I'm not better yet, why God's allowing me to go through this at all, why the process of getting diagnosed is taking so long.  Reflecting on this today, I think the confusion comes from my assumption that God's provision equals an immediate response....which I didn't realize was an assumption I had until today.  Although I'm not totally sure how to remedy this, I think the answer lies, in part, in waiting...one of my least favorite things ever.  So I guess my focus for now is practicing patience and not overdoing complicated things like exercise and staying awake.

    As I was writing this, my neurologist's office called and said they finally got the order for an ambulatory EEG and sent it off to the sleep center office who said they'll call in the next couple days to schedule an appointment!  So....still more waiting but waiting with forward motion.

    I really appreciate all of the prayers and support!  Thank you, all. =)